Your key Rights
NDIS Rights:
- Choice and control over your supports and services
- Age-appropriate providers (not aged care)
- Plan reviews when circumstances change
- Appeals process for disagreements
Healthcare Rights:
- Appropriate specialist referrals and treatment
- Involvement in all care decisions
- Second opinions from other specialists
- Dignified treatment regardless of condition
Accommodation Rights:
- Age-appropriate housing options
- Safe, secure environments designed for your needs
- Choice of where and how you live
- Protection from abuse or neglect
Red Flags: When Your Rights Are Violated
- Aged care services offered to people under 65
- NDIS funding cuts without proper assessment
- Exclusion from care planning decisions
- Unsafe living conditions
- Discrimination in employment or services
When to Seek Advocacy
Get Help Immediately:
- Services withdrawn without notice
- Discrimination or inappropriate treatment
- Safety concerns in care settings
- Rights being ignored
Planned Advocacy Support:
- NDIS plan disputes or appeals
- Healthcare system navigation
- Service provider selection
Self-Advocacy Tips
Document Everything:
- Keep records of all communications
- Note dates, times, and people involved
- Save emails and letters
Prepare for Meetings:
- Bring support people
- Write down key points beforehand
- Request written summaries of decisions
Getting Professional Help
The Dementia Foundation Advocacy:
- Free community advocacy for all families
- NDIS-funded intensive advocacy for participants
- Specialist knowledge of young onset dementia rights
Key Contacts:
- The Dementia Foundation Advocacy Support: 1300 865 282
- NDIS Complaints: 1800 035 544
- Elder Abuse Helpline: 1800 353 374
- Emergency: 000
Get Advocacy Support – Call 1300 865 282
