Practical Tools for Families.

How to Explain to Family and Friends

For Adult Family Members:

• Use simple, clear language about the diagnosis
• Explain it’s a medical condition, not their fault
• Focus on how they can help and stay connected
• Share reliable information resources
• Encourage questions and ongoing conversations

For Children and Teenagers:

• Age-appropriate explanations about brain changes
• Reassure them they’re not responsible
• Explain that love and personality remain
• Maintain routines and normalcy where possible
• Consider professional counselling support

Sample Scripts:

• Mum/Dad has a condition called dementia that affects the brain
• Sometimes they might forget things or act differently, but they still love you
• We’re getting help from specialists who understand this condition
• It’s okay to feel confused or sad – let’s talk about it

How to Communicate Effectively

Daily Communication Tips:

• Speak slowly and clearly
• Use simple sentences and familiar words
• Make eye contact and use gentle touch
• Give time to process and respond
• Avoid arguing or correcting repeatedly

When Communication Becomes Difficult:

• Focus on feelings, not facts
• Use visual cues and gestures
• Write down important information
• Break tasks into simple steps
• Stay calm and patient

Managing Challenging Conversations:

• Validate their feelings even if facts are wrong
• Redirect to positive topics when possible
• Use distraction techniques for repetitive questions
• Keep conversations short if attention spans are limited

Creating a Supportive Home Environment

Safety Modifications:

• Remove trip hazards and clutter
• Install grab rails and non-slip mats
• Improve lighting throughout the home
• Secure dangerous items (sharp objects, medications)
• Consider door alarms if wandering is a concern

Visual and Spatial Supports:

• Use contrasting colours to highlight important areas
• Label rooms, cupboards, and important items
• Create clear pathways through the home
• Remove mirrors if they cause confusion
• Use photos and memory boards for orientation

Bedroom Setup:

• Ensure adequate lighting with easy-to-reach switches
• Keep the room familiar with personal belongings
• Use nightlights for safe navigation
• Consider bed rails if falling out is a concern
• Keep the room temperature comfortable

Living Areas:

• Reduce background noise and distractions
• Arrange furniture to create clear pathways
• Keep important items in consistent locations
• Use calendars and clocks that are easy to read
• Create comfortable seating areas for activities

Planning for Health Changes

Monitoring Health:

• Keep regular medical appointments
• Watch for changes in behaviour or abilities
• Monitor eating, sleeping, and hygiene
• Track medication compliance
• Note any new symptoms or concerns

When Abilities Decline:

• Adapt activities to current abilities
• Increase supervision and support gradually
• Modify the environment for safety
• Consider additional professional support
• Plan for future care needs

Care Planning Steps:

1. Regular family meetings to discuss changes
2. Update care plans with healthcare providers
3. Review NDIS plans as needs change
4. Consider additional support services
5. Plan for increased care requirements

Managing Spatial Awareness Issues

When Depth Perception Changes:

• Use contrasting colours on stairs
• Mark glass doors and windows
• Avoid busy patterns on floors and walls
• Ensure even lighting without shadows
• Keep floor surfaces consistent

Helping with Navigation:

• Create clear sight lines through rooms
• Use familiar landmarks for orientation
• Keep furniture in consistent positions
• Provide verbal cues about location
• Use simple directional signs if helpful

Building Your Support Network

Professional Support:

• GP and specialist medical team
• The Dementia Foundation support services
• Allied health professionals (OT, speech pathology)
• Counsellors and social workers
• NDIS support coordinators

Personal Support:

• Family and close friends
• Peer support groups
• Community organisations
• Religious or cultural groups
• Employer and workplace supports

Emergency Contacts:

• Keep updated contact lists accessible
• Include medical professionals and support services
• Share with other family members
• Post important numbers visibly in the home

Resources and Further Support

Educational Materials Available:

• Young onset dementia fact sheets
• Communication strategy guides
• Home modification checklists
• Legal and financial planning resources

Support Services:

• The Dementia Foundation community programs
• Local support groups
• Carer respite services
• Educational workshops and training

Remember: You don’t have to manage this alone. Professional support and community connections make the journey easier for everyone.

Access Family Support – Call 1300 865 282

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