Rights & Advocacy Information

Know Your Rights, Protect Your Interests

Understanding your rights helps ensure you receive age-appropriate care and services when living with young onset dementia.

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Rights & Advocacy Information

Fight for the Services You Deserve

Your key Rights

NDIS Rights:

  • Choice and control over your supports and services
  • Age-appropriate providers (not aged care)
  • Plan reviews when circumstances change
  • Appeals process for disagreements

Healthcare Rights:

  • Appropriate specialist referrals and treatment
  • Involvement in all care decisions
  • Second opinions from other specialists
  • Dignified treatment regardless of condition

Accommodation Rights:

  • Age-appropriate housing options
  • Safe, secure environments designed for your needs
  • Choice of where and how you live
  • Protection from abuse or neglect

Red Flags: When Your Rights Are Violated

  • Aged care services offered to people under 65
  • NDIS funding cuts without proper assessment
  • Exclusion from care planning decisions
  • Unsafe living conditions
  • Discrimination in employment or services

When to Seek Advocacy

Get Help Immediately:

  • Services withdrawn without notice
  • Discrimination or inappropriate treatment
  • Safety concerns in care settings
  • Rights being ignored

Planned Advocacy Support:

  • NDIS plan disputes or appeals
  • Healthcare system navigation
  • Service provider selection

Self-Advocacy Tips

Document Everything:

  • Keep records of all communications
  • Note dates, times, and people involved
  • Save emails and letters

Prepare for Meetings:

  • Bring support people
  • Write down key points beforehand
  • Request written summaries of decisions

Getting Professional Help

The Dementia Foundation Advocacy:

  • Free community advocacy for all families
  • NDIS-funded intensive advocacy for participants
  • Specialist knowledge of young onset dementia rights

Key Contacts:

  • The Dementia Foundation Advocacy Support: 1300 865 282
  • NDIS Complaints: 1800 035 544
  • Elder Abuse Helpline: 1800 353 374
  • Emergency: 000

Get Advocacy Support – Call 1300 865 282

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